SLOVENIA DONOR



Slovenia Donor is the Slovenian Registry (list) of unrelated donors of haematopoietic stem cells that includes anonymous data about the HLA (tissue antigens) of adult donors of haematopoietic stem cells and the tissue antigens of the donors of cord blood, which are collected in the public umbilical cord blood bank of the Blood Transfusion Centre of Slovenia.

- 1991: the Slovenia Donor registry was established (Mateja Bohinjec, PhD)
- 1992: a full member of the Bone Marrow Donors Worldwide (BMDW) registry.
- The highest growth of the registry was recorded after a public call was made by Mrs Irena Grafenauer at the end of 2003.
- 2003: 439 active members listed in the Slovenia Donor registry.
- 2004 to 2010: - 105 organised actions for entry into the registry throughout Slovenia,                                       
- the largest entry – 770 new members (Spuhlja).

 

 

Unfortunately, not all donors are suitable for a patient in need of haematopoietic stem cells. The transplantation of haematopoietic stem cells requires a match in the patient and donor's tissue antigens called HLA. Human leukocyte antigens or HLA are signs that all of us carry on the surface of our tissues. Every person has a distinct selection of HLA tissue antigens that is rarely repeated in another person. In case of siblings, the probability of two persons having the same tissue antigens is the largest and amounts to approximately 25%. Slovenia Donor brings together unrelated Slovenian donors of haematopoietic stem cells and umbilical cord blood, so that a matching donor can first be sought within our own lines. The inclusion of Slovenia Donor in the global registry of stem cell donors, the Bone Marrow Donors Worldwide, enables a search among donors from across the world. The larger is the selection of donors, the higher is the chance to find a donor with matching tissue to that of a patient.

The transplantation of haematopoietic stem cells comes into question primarily in the treatment of malignant and non-malignant diseases of bone marrow and other haematopoietic organs (leukaemia, myelodysplastic syndromes, multiple myeloma, malignant lymphoma and severe aplastic anaemia). This method can also be used to treat certain solid neoplasms and certain inherited and autoimmune diseases.

The donation of haematopoietic stem cells is an extraordinary form of altruism that may treat a disease and even prevent death, since the transplantation of haematopoietic stem cells from an unrelated donor is frequently the only chance to cure a patient.

Any person who wants to become a donor of haematopoietic stem cells for any patient worldwide can enter the Slovenia Donor registry and join over 21 million donors worldwide. The BMDW world registry also enables a search for compatible cord blood among over 500,000 units.

All personal information is stored pursuant to the national and international legal and professional regulations. Only a limited number of authorised people employed at the Slovenia Donor (SD) registry can relate a donor's code to his or her personal information.

Furthermore, any search procedures for potential donors to domestic or foreign patients via the Slovenia Donor registry are suitably protected.

The Slovenian legislation does not permit the disclosure of a donor's identity and direct contact between the donor and recipient. However, written communication with the registry's intermediation is possible.